Every fall we go through it: the changing of the therapy schedule. I try not to rearrangethings too much in the summer just to avoid this exact scenario.Something always happens that is out of my control and forces us to make changes. The behavior therapist cuts back hours or Hugh switches from AM preschool to PM preschool. There was that one time the school changed dismissal time. It’s enough to drive a mama to drink. Or at the very least, throw her day planner out the window.
Between the two boys, we do 20 hours of therapy a week. Luckily the behavior therapists come to our home, so at least they can meet the boys at the bus stop and get started right away. But speech, OT, social group, and PT are all in clinic offices. I am sure that people would be amazed by the amount of therapy my kids are in. They work so hard and it really is helping them (because you know that if it wasn’t working, I wouldn’t be doing this at all). So it is hard, when their developmental pediatrician looks at me and says, “Hey, I’m hearing great things about music therapy. Have you ever considered adding it to their regimen?” to say no. Sure it is inconvenient for me but what does that matter in the face of getting my children the help they need? At what point do I even have the right to say no? I second guess myself so much with them—the curse of every modern-day parent. But how could I look them in the eye and tell myself that I’m doing the best I can if I am not doing everything in my power to get them the help they need? You start to think, well, ABA for 5 hours is helping them so much, can we do 6? Then the whole house of cards that is my schedule starts to wobble.
This year is especially difficult because my little guy, Hugh, is going to be going to school every day. I used to get the majority of his stuff out of the way while AJ was in school; now that option is gone.In order for life to be manageable at all, I have to try and get the boys’ appointments simultaneously. At the very least, I need them back-to-back so we aren’t traipsing all over town from the moment they get out of school until bedtime. So I sit here with my planner, trying to come up with time slots for everything that needs to be done and there just aren’t enough hours in the day most of the time. I’m sure at some point I will figure it all out but right now it just feels overwhelming! At the next IEP meetings, I will push for more of this stuff to be done at school, but until then it is on my shoulders.
Wish me luck!